Friday, May 14, 2010

Prayer for Baby Emma...

  Prissy tried to tell me what to post tonight, but of course I do what I want so here is a quick update. She is doing well, adjusting to being home and getting back in the groove of things. We do know now why when it was 90 degrees outside and everyone else was pouring in sweat and burning up, she was complaining of being cold. Her blood is too thin, but doctors are correcting that.



     I love my Prissy to death, but tonight I am requesting, if not begging for prayer for baby Emma. Emma is in the hospital on a ventilator and doctors do not know why she stopped breathing. I could not imagine going through what her parents has been through as first time parents in the 2 short months that Emma have been here with us. Please pray for Emma's healing, that the doctors find out what is causing Emma to stop breathing and that they have a solution to the problem.
      Dear God, Our God, thou who created the Heavens and the Earth; I come you with my arms outstretched, asking for prayer for Emma Young. God, I know you are watching over Emma and I pray that you heal and touch her right now. God, you said that if we ask in your name; we shall receive. So God I am asking for healing for Emma; I am asking that you allow the doctors to find the cause of her breathing problems as well as a solution to them. God, give her parents and loved ones strength and let them know that you hear their prayers and you will take care, as well as heal their baby girl. In your son, Jesus' most Holy and precious name. AMEN

"Walking in Faith..."

Thursday, May 13, 2010

A rough first night home...

   We knew that bringing Prissy home was going to be a challenge and require a lot of work. She came home on Wednesday to a house full of sick people!!! Her husband, daughter, and the 2 year old all have severe sinus infections. The 2 month old baby has an ear infection. They all went to the E.R on wednesday night and when they got home it was really late. In addition to dealing with all these sick people in her house, she didn't have a good night's rest. When I went to visit her this morning she remarked that "She can't do it"; her bed doesn't allow her to turn as she needs to for pressure relief and she got off schedule for her cathing.

       I told her that we may have to get her a hospital type bed until she is stronger and able to turn, even though she doesn't or didn't want one to begin with, so we will just see how that goes and I also feel that we will need to get a caregiver until she is stronger and in less pain. SN: just spoke with her and she claims the hospital bed is for old people, she will learn the hardway!

     Otherwise things are well with her and she has a dr. appointment tomorrow to start her coumadin therapy to prevent blood clots.

Wednesday, May 12, 2010

She's home...

   Today, May 12, 2010 Scilla was discharged from Roger C. Peace. So here we are :
  • 58 days
  • with a spinal cord injury
  • a wheelchair
  • new medical problems
  • a blood clot
  • fluid in the lung
  • and a life forever changed later!

    Scilla was definitely excited to go today. She called me last night and said all she had was a "wake up" left, meaning she go to sleep and wake up and she would be coming home! She called me at about 8:15 this morning to make sure I was awake. I got to RCP at about 9:15, but we didn't leave for another almost 2 hours. After leaving RCP she wanted to go to GARDEN RIDGE and then to the DOLLAR GENERAL store, followed lastly by a stop at TACO BELL. She commented on our ride home that the grass smelled good, to which I replied you are just happy to be going home and  to smell some fresh air...ha ha!

    I got her home and safely in her house, and now I am starting to think the hard part starts! No longer can we call nurses or CNA's or doctors or therapists to assist; it is all on us. The road ahead of us seems very tedious and I am not sure if we can do it alone, I think we will definitely need to hire a nurse or caregiver; although she doesn't really want one.

    Since I (well my awesome hubby) am/ is  the only in the family with a sedan type vehicle, I told her that Greg is welcome to use the car at any time until they can get a car of their own. She will have therapy 3 days a week and she has MANY doctors appointments; the first of which is this Friday. The week of the 24th in addition to therapy she has appointments on MONDAY, TUESDAY, and WEDNESDAY; that is a lot of doctor visits to go to in one week!

      Before I end tonight's blog, I must ask for prayer for sweet baby Emma. She has been hospitalized again. She stopped breathing on Monday and was rushed to the hospital. They are running several tests and scans trying to find a cause, so to all you prayer warriors out there, please whisper a prayer for Emma and her family tonight!

        As I end tonight, I just want to thank God for blessing us; he has done more than enough for us and I just want to give him praise for saving my sister's life; she has had some rough times during the past 58 days, but God has kept her and gave a testimony!
WELCOME HOME PRISCILLA
 WE LOVE YOU!

Monday, May 10, 2010

56 down; 2 more to go

     As of today, Scilla has been in the hospital for 56 DAYS!!! As it now stands she will be discharged on Wednesday, May 12, 2010 which will make it 58 days total that she was/has been in the hospital. 2 more days and it would have been a full 60 days/2 months.

      Prissy is doing great, her mood is awesome and she is really excited about going home. We are also excited, but now it means we have to start the process of finding a caregiver for her until she is stronger and experiences less pain in her back. As I think back on what we have been through, no one but God could have brought us through. God has blessed us immensely, there were times when we questioned him and asked why, but yet he still kept on blessing us. Prissy's is doing better than anyone expected and her nurse even said today that she is the first woman to self Cathe in a VERY, LONG time and that her progress has exceeded their expectations! I know some of the progress is amazing to medical professionals; but they forget we serve and awesome and mighty God and he is just taking care of child as he promised he would! Thank you God for your grace and mercy!!!

     Today, I am including some pics taken during the last week; that I have been meaning to post.
above and below: lifting weights in OT to increase upper body strength



Above and below: Chef Mimi baking cupcakes for Scilla's nurses to celebrate nurses day on
Thursday, May 5, 2010

THE GREAT TASTING CUPCAKES


Above is a picture of Greg, Scilla, Mimi, Travion and Sadik. Outside in courtyard.
Below is Scilla with her daughter, Kelle and of course my little had to jump in the picture

The next two pictures are of Prissy at Walmart on Saturday after I picked her up for her day pass:


above she is giving me a smirk b/c I am giving her a taste of her medicine with all the pictures I take...ha ha

Sunday, May 9, 2010

Happy Mother's Day !

   I must begin by saying Happy Mother's day to every adult female woman. Whether you have biological kids or not at some point you have served in the capacity as a mother to someone! So to all of you beautiful ladies, HAPPY MOTHER'S DAY!

      God has a special place in his heart for mothers. ALMOST, but not every woman can give birth, BUT it takes a special kind of woman to be a mother. Not everyone is caring and nurturing. I think that God knows that motherhood can be a challenge and he chooses "special" moms for "special kids". I think that God knew that I was not capable of handling a child with "special needs" after all that I had been through during my pregnancy with MiMi. God knew that I had been through enough and fought hard enough just to get her in this world. For those of you who don't know my story, in a nutshell: At 3 months pregnant it was discovered that my cervix was opening  and it was happening rapidly! I had to visit 3 specialist before they would do the cerclage(stitching my cervix closed) because they don't normally do it for first pregnancies, but I refused to miscarry my baby knowing that something could be done to save the precious life forming inside of me. I can vividly remember sitting on the floor in my bedroom beside my bed praying and crying out to God to save my baby because at the times I felt my cervix contracting. Needless to say, I had the cerclage followed by 5 months of bed rest and in June of 2006 I gave birth to my precious "Myr'Acle"!  I named her "miracle" because I felt that was what she was; a blessing from God. God heard my cry and answered my prayers.

     I said all that to say that God will not give us more than we can bear. He knew that after the struggle I went through with my pregnancy, then laboring for 24 hrs, and finally having to have a C-section that I couldn't handle anymore than I had been through. God knows what storms we are able to weather; he knows what trials and tests we can pass. He knows which mothers are capable of taking care of children with special needs; the one's who will provide them with the best love and care.

     When God created mothers he put something on the inside of them that no one will understand; he gave them the ability to just make everything better! As I think of Scilla and what she has gone through; you see her needing help with the smallest tasks, but yet still, her priority has been her family. One of her doctors even commented that Scilla was more concerned with making sure her 16 year daughter  was okay than with what was going on with her. That is a testament to greatest love of all; a mother's love! My mother, my rock, my best friend has stood strongly on her faith in God and has never doubted his ability to bless her beyond measure. It is hard to get a call saying your child; your first born has been injured severely; but she didn't miss one beat, she did what she taught all her girls to do; Pray! My dear classmate, Mary Beth, sweet Emma's mom; she has really been tested; but in spite of, she put herself last and Emma first. She had a painful C-section with Emma, but that didn't stop her from being by Emma's bedside almost every day for the entire day. She made sure Emma's every need was met and went over nurses and doctors or whoever stood in her way to make sure Emma received the best care during her stay. Then there is Lashonda; she had her baby boy 4 months early. The doctor wanted her to let her son die; but she refused and said do whatever it takes to save my baby while I start praying. These women exhibit the greatest love there is and although they have been through a lot in the past two months; they share a common bond; they  have a strong faith and believe in God to perform the miracles they know he is capable of.

     I leave you today with my mothers day poem I wrote for Prissy:
Priscilla



Praying for strength, healing and restoration.
Realizing that I must stay focused and
In God I must trust.
Standing on his holy word, knowing that he
Can do the
Impossible.
Learning new things and new ways of
Life.
All I can do is continue to walk in faith…



Priscilla, we love you and know that your faithfulness will bring you through.

Tuesday, May 4, 2010

Confused ???

     Today started out as rainy and with nothing too excited to report. Prissy got a day pass or rather a pass for about 3 hours to go handle some business issues that she could only take care of in person. I wasn't going to post today because not much else happened; that is until tonight...

     Tonight for the 2nd night straight Scilla has claimed that the muscle spasms occuring in her stomach were painful and that she could feel it. She says the pain was so bad that she called my mom crying and upset; saying that she was in pain. My mom prayed for her and tried to comfort her over the phone. We are not sure what is going on, but the Doctor had to be called at home to give authorization for medication for the spasms. I am online researching and trying to find out something to make sense of all this.

     Scilla's injury is from T9 down, which means that she should not be able to feel anything below her breast bone. There are cases of people regaining some feeling after SCI; but I am not sure if that means anything as far as her paraylsis is concerned. This whole muscle spasm, feeling, and paraylsis stuff has got me saying hmm... right about now; but I have prayed about it and asked God for healing and restoration and I will never loose faith in his ability to heal and perform miracles; but I also try not to get my hopes up or hers because I would hate to see her disappointed.

    If I find any relevant research tonight, I will let everyone know what I discover; until then I am going to continue to have faith, knowing that I serve a great God and an awesome God is capable doing things that man may never understand.

"walking in faith..."

Monday, May 3, 2010

Fun Friday; Saturday and Sunday day passes...

     I haven't posted all weekend because I have taken this time to relax, do somethings for myself and SHOP! Prissy enjoyed both her day passes and although it was very tiring for her, she is continuing to do more. She went to Wal-Mart and we went to dinner Sunday at Ruby Tuesdays. She did well at Ruby's for the most part; she did get a little frustrated at the salad bar because she couldn't reach everything she wanted and was not able to carry her plate on her own. She did attempt to try these things and although I was at the bar with her and told her that as time goes on she will get better; she was still a little frustrated.
     I see the progress that she has made, but I see that she still needs A WHOLE LOT OF WORK! It looks as  though when she comes home on May 12th that she is still going to need around the clock help and will not be able to be alone at anytime. I don't know how long it is going to take, but I can't wait until she is independent enough to transfer from her chair on her own, because I think that will just make life easier for her; not having to depend on someone else all the time.
       She has been having muscle spasms and says she felt one in her stomach today. I want to believe her and I have faith that God does, can and will work miracles, but at the same time I do not want to give her false hope. So at times when she says she can feel, I try to change the subject or make a joke because I don't know how I should react.
    On a lighter note, I have noticed Prissy is smiling a lot more and seems to be returning to her happy self . Here are some pictures from the past week:
Pushing Aunt Scilla going to look for Tracie (therapist)

Doing their supermodel pose!

Prissy had to chase her in a circle and sing Hannah Montana!
Great Recreational therapy ;)

Throwing up their peace signs!

Travion, Scilla's foster son!

Lastly, I leave you with a video of Mimi and Scilla playing outside; they were having a great time and although we didn't know it at the time, it was great therapy for Prissy!