Weekly Conference...1 day early!

    Every Thursday, all my sister's doctors, therapists, and case worker have a weekly conference to discuss her progress and the course of treatment for her. Well this week, because of the Easter holiday, her conference was today, Wednesday.  This is her 2nd conference and here is what we learned after being briefed by my sister's case worker this afternoon:

• She is not progressing as fast as she should or they would like for her to, so they are going to see if her stay can be extended at least 3 weeks perferably 4 or more if needed, for a total of at least 7 weeks at RCP (the norm or average is 4 weeks), we are currently in our 2nd week.
• Also they are still saying around the clock care will be needed, but this may be temporary.
• They are hoping the extra time at RCP will get her where she needs to be and then once she is home, she will continue with her therapies.

     As I am writing this blog, I am on the phone with Priscilla, she is having really bad pain, tenderness and bloating in the abdomen, but it could be several things, considering it is only the area where she has feeling; it could be:

1. pain from her back
2. pain from needing to empty her bladder or bowels

I hate to hear her in such pain and wish I could do something about it. She is hurting so bad that she does not want to lay down, she doesn't want pain medicine, she just wants to feel better. She asked me to pray with her and I did and I know that our God is awesome and she will begin to feel better soon. She didn't have a good night on Tuesday night and I am hoping tonight is better, but the way it looks now; I am not so sure.

   I told my mom that I will be so glad when she comes home, but that does not leave much time for us to come up with a plan for her, as far as where she will live or how to get her in an accessible home. Also again today she wanted my mom to rub her back; my mom was massaging it when Scilla said to her
 "Rub it like a momma rub" meaning she just wanted mom to gently slide her hand across her back while she relaxed. As mom and I rubbed her back, of course we had an extra set of small hands that wanted to rub too! Mimi helped rub Aunt Scilla's back, but for her it was just an excuse to play in lotion.

I have two pictures to share today, the first one is of my babe, Prissy about to take a phone call, she is sleepy and ready to get back in bed after an afternoon full of therapy:

And this one is of her, LeeLee (our baby sister) and "Louie"( my mom's foster child, might as well say he is LeeLee's baby, because he loves her to death and was his main caretaker the first 6 months of his life):